Hellobee Boards

@Mrs. Jacks: Exactly this! I wish they could immediately start using it but I understand they are switching over from the old ICD-9 system?

@MamaMoose: oh no! Do they suspect FPIES? It's a tough road, but if M does get an FPIES dx just hold on to the knowledge/hope that one day your LO should outgrow it! That's what I do and take it one day at a time.

@MamaMoose: I hope you get some answers! It's worth looking into an validating your concerns. Good for you for trying your hand at the elimination diet! I did top 8 + gluten free for awhile and once we still couldn't get things under control dropped to the TED (total elimination diet) with only 3 foods (quinoa, broccoli, carrots) and slowly added back in one at a time. That worked better for us, essentially working from nothing instead of guessing at what was the issue. Also your LO doesn't necessarily need to vomit with FPIES. My son as more of a bloody/mucous stool reactor but did vomit with certain foods also. A little girl recently got diagnosed with mucous in her stools being her only symptom. She was 15 mo at diagnosis and still has no safe foods. Good luck!

@MamaMoose: I'm so sorry! Getting in wig a pediatric GI is so tough! Our original one had a very long (3 month) wait but we got in with in a week from being on the cancellation list also. The GI we just switched to had a month wait for an "urgent" appointment but DS's allergist pulled strings to get it moved up under a week...basically just hang in there and cancellation happen all the time so if/when they call with one jump on the appointment!