Great post from a fab blogger. I clearly don't have a child with Downs syndrome, but her hesitations for celebration sound familiar! What do you guys think?
http://www.kidscreektherapy.com/down-syndrome-awareness-month
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i feel like this is something that can really only be weighed in on by the parents who live it. I know there are a lot of wonderfully inspiring people out there who share their stories and their beautiful children. Also i feel like most of us see someone raising a child with special needs and feel amazed at how hard it must be. Sometimes to the extent of pity which I think most do not want. Acceptance, understanding and support seem the ultimate goal.
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I like this.
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I know there are challenges because why else would people screen for down syndrome in time for them to do something about their pregnancy? However, I didn't know what those challenges are. This short blog post definitely sheds light on what those challenges are and if anything that's what the awareness should be about too.
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We see so many people with Down's syndrome living what we classify as "good" lives. There is an adult down the street from me who is very high functioning. Down's is so common, though, you think of those people, not the who are very disabled. I think it's important for people to be aware that it presents in a huge variety...Including the challenges this blogger talks about. I guess the term celebrate came about as a way to be more supportive and open towards those with disabilities? IE don't ostracize? Don't be ashamed? I thought it was an interesting post, though
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For every child that is high functioning, there is one that is not and those are the kids that society shuns. My brother is disabled and my mom always says she wishes he had Downs because then at least she would know what to do and people would know how to treat him.
I think we have a long way to go in this country, especially when the children become adults.
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@MrsMccarthy: I disagree. I think by sharing our perspectives with those outside of our insular little groups, everyone learns! Agree with you on the ultimate goals
@Mrs. Lemon-Lime: I'm glad that it was informative for you! She also has an older daughter with CP, which is how I found her blog.
@blackbird: Yes! People with Downs syndrome are more likely to have a huge host of other problems, I think heart problems are extremely common actually. Just like with preemies, I feel like people only like to share the "good" stories or stories of triumph, and not the hard parts sometimes.
@looch: Ugh. I can relate to your mother in that there seems to be some level (although I think it's pretty superficial) of societal support specifically for (children with) Downs syndrome, whereas more complicated or nuanced things (such as what D is dealing with) aren't on anyone's radar. I am only familiar with the US healthcare system, which honestly stinks for assisting with long term care of a huge range of things - do you know of a country which is better at managing it all? Just curious, since you said this country
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I have a brother with DS, and while I understand where the writer is coming from, I don't know that I agree with her completely. I've seen many posts about the myths surrounding DS (the "always happy" myth, for one), and the tough battles that parents of kids with DS face, and that sort of thing. I've also seen posts about how far we've come, how life expectancy is longer and people with DS are doing more than they've ever done before. The positive and the problematic are both being talked about, from what I've seen, and that's what an awareness campaign is all about.
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@Mrs. Tiger: I think it's just that a lot of people think "Down's is no big deal" but in reality.....it is. And many have no idea what's going on
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8 comments