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@travelgirl1: thoughts and prayers to your DH. Sorry to hear that.
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@2littlepumpkins: Thanks
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@travelgirl1: Yes, he has fully recovered. He has a host of other health complications not related to that, but he is glad to be able to move his face again!
I sincerely hope that they are able to figure out what is going on with the next MRI.
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@travelgirl1: Oh, that's really terrible that your husband is having partial paralysis and no one has figured it out yet! That's crazy. What kinds of specialists has he been referred to?
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@Jess1483: gluten and dairy for vaginal pain, FTW!!! That's even better than paleo for dry eyes. Totally ridiculous.
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@Anagram: A few ENTs who were all great and stuck with him but finally discharged him saying it was a neurology issue. A neurologist who was terrible. A physio who admitted she had no clue what to do with him (he's a physio too so he was able to rehab himself a bit initially) and some ophthalmologists now his eye is affected. His neurologist was awful though and so we paid privately to find a new one a few hours away. This new neurologist seems much better and wrote to DH's GP asking for him to refer him back to himself, but in an NHS capacity so he could order another MRI. We also paid for an appointment with a physio who specialized in facial paralysis and had neurological training. She was very good. It started early October and we literally have no clue what is wrong with him. But he can't work so has been at home since then.
I really hope you get to the bottom of your illness too, it must be awful! -
@Anagram: by any chance, have you doctors mentioned dermatomyositis to you? (According to google it's often found in combination with sjogren's.) it's what my mom had and your symptoms sound eerily similar.
Basically she had a full body rash that didn't respond to steroids. She tried to see a specialist but because it was "just a rash" had a several month wait. It was only when my dad was talking to a family friend who was a doctor someone was able to diagnose her. And only then would a specialist see her now realizing how serious it actually was.
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@Anagram: I'm so sorry you are going through this. And people say the stupidest things sometimes.
I had several losses the past 2 years, and if I had one more damn person tell me to take essential oils to "get pregnant " I was going to lose it. I can obviously get pregnant thanks, just couldn't manage to stay pregnant. And in the middle of a loss, bleeding and hormonal, I really don't want your advice period. Or to hear how I HAVE to try again (that would be my mom). I have an unfair hatred of essential oils now over it.
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