grape / 89 posts
I'm so sorry- there is nothing fair about this. Do what is best for you and your family and don't worry about what anyone else thinks.
nectarine / 2771 posts
So very sorry to hear Sending you support and love, and keeping your family in my prayers
pomegranate / 3401 posts
I'm so so so sorry to hear this. Sending you and your family lots of love during this challenging time.
pear / 1767 posts
My heart is breaking for you... I don't even know what to say. How can this world be such a cruel place?!? It's just so damn unfair especially after all you have been through already. Just know that I'm thinking about you and praying for you and sending all of my love and support.
cantaloupe / 6687 posts
My dear sweet friend, I have been thinking about you and your sweet baby boy nonstop since you got this news. As you know, you always always always have my support and love no matter what. It is a nightmare that no parent should have to face. No matter what, you are the best mom, everything you do is out of the most pure and deepest love, and you are stronger than you can ever imagine. My heart is with you always and whatever you need, just say it
persimmon / 1328 posts
I have been thinking of you since your first test result and I am just devastated for you! I know how much you have gone through and how much your little boy is wanted. You will make the best decision you can for him and your family. You know our story and continuing struggles, so if you ever want to talk about life with a complex special needs baby, I am here. So much love to you and your family! ️️️
nectarine / 2951 posts
My heart goes out to you as I'm sure this is the hardest decision of you life. Just know you have support here no matter which path you choose. ️
pomegranate / 3595 posts
I am so sorry you are dealing with this. I will be praying for you and your family.
pomegranate / 3127 posts
I'm so very sorry. Praying that you get some clarity soon. What an awful, unfair situation... whatever you decide, no judgement at all, just wishes for strength and healing.
hostess / wonderful apple seed / 16729 posts
Hugs!! I'm thinking of you and the decisions you have to make. I'll be there for you in whatever decisions you make.
clementine / 806 posts
I'm crying at my desk reading this. I am so heartbroken for you. I wish you strength and peace as you find the decision that is best for your family.
pomelo / 5524 posts
Oh no...I am so sorry. I've been silently following your story and was praying for you all along. You have an incredibly difficult and heartbreaking decision to make, and I wish you all of the love and peace possible while making that decision. There are no words that can help, but if there's anything I can do, please let me know. Praying for you and your sweet boy.
grapefruit / 4817 posts
I've been thinking about you guys all morning. This sucks and I'm so angry for you. I'm so terribly sorry.
pear / 1986 posts
I am so sorry to hear this heartbreaking news and wish nothing but love, support, and peace for you and your family as you work through this time.
pomelo / 5628 posts
This is truly heartbreaking to hear and I am so sad that you have to be here. You have my support in every way and I wish there was something I could actually do to ease your pain. I am so very sorry and wish you and your family peace. I know there have been a variety of bees in sifferent similar situations that you can reach out to, but please know you can contact me anytime!!
pear / 1503 posts
My heart is breaking reading this!!! I can only imagine the level of pain and distress this brings to your family, especially given your previous struggles. You have the support of all of us, as you and your family figure out how to handle this. I hope you find answers soon. No matter your decision you will always find acceptance here!
A boy in my class growing up had SB. He was a pretty happy little boy, but was confined to a motorized wheelchair, and had learning disabilities, so he was eventually held ball in school, but did graduate high school. He was never able to support himself as an adult and died in his late 20s. Despite all that, he had a lot of friends and support in the community, and our town renamed playground after him when he passed. He had a much older sister, but I'm not exactly sure what effect his disability had on the family, his mother never worked so she could stay home and support him, and the family struggled financially.
clementine / 918 posts
I just want to say that I'm here for you, Mama. You and your family are in a tough spot having to make decisions for someone who you love with your whole heart. I hope you take your time, make the best decision for your LO and your family, and feel right with the decision. If you need someone to talk to who has been through some tough stuff, I'm here for you. HUGS
pear / 1558 posts
I'm so very sorry to hear your news. This is just gut wrenching. Love & peace to you & your family that you can get all the information you need to decide how to proceed.
grapefruit / 4819 posts
I haven't been able to stop thinking of you and your sweet baby boy since you first posted. I am so, so sorry. You'll continue to be in my thoughts as you make decisions no parent should ever have to make. All the love in the world to you.
kiwi / 545 posts
I am truly sorry to read your news - sending you and your family much love and support
pear / 1718 posts
Sending love, prayers, and support for your family. I'm so sorry you are faced with this heartbreaking decision.
cantaloupe / 6869 posts
This is just so completely heartbreaking. I hope that all of the support that has been posted here will help in some way but I know that in times like these words are not enough. We will all be thinking of you and your family.
pomegranate / 3983 posts
I'm so sorry you're going through this. Will be thinking of you and sending strength and peace.
cantaloupe / 6630 posts
I think all of our hearts are breaking for you and your family today. I'm so very sorry. Lots of love and support to you, whatever you decide. You will never get judged by us.
grapefruit / 4717 posts
I just don't even have the words to express how sorry I am that this is happening. For what it's worth, one of my relatives has spina bifida and is now about 36 years old. I don't know how severe, but I'm happy to connect you to his dad if you'd like some guidance as to what it is like raising a child who has this. xo
kiwi / 612 posts
I am so sorry, what devastating news. Much love and support from me as you navigate the next steps.
blogger / cherry / 174 posts
I'm so sorry to hear this news for you and your family. I hate to hear of another family facing a terrible diagnosis. Do whatever is best for you and your family. Sending you thoughts of strength right now.
kiwi / 673 posts
I am so very sorry.
I'm sure you've already asked or have thought of this, but could your OB call the MFM and get an appointment for you today? When my OB was concerned about something time sensitive she made the call herself and they squeezed me in a few hours later.
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