Hellobee Boards

Login/Register

Our baby has spina bifida

  1. charleysmom

    grape / 89 posts

    I'm so sorry- there is nothing fair about this. Do what is best for you and your family and don't worry about what anyone else thinks.

  2. yerpie110

    nectarine / 2771 posts

    So very sorry to hear Sending you support and love, and keeping your family in my prayers

  3. Ginabean3

    pomegranate / 3401 posts

    I'm so so so sorry to hear this. Sending you and your family lots of love during this challenging time.

  4. Shantuck

    pear / 1767 posts

    My heart is breaking for you... I don't even know what to say. How can this world be such a cruel place?!? It's just so damn unfair especially after all you have been through already. Just know that I'm thinking about you and praying for you and sending all of my love and support.

  5. sandy

    cantaloupe / 6687 posts

    My dear sweet friend, I have been thinking about you and your sweet baby boy nonstop since you got this news. As you know, you always always always have my support and love no matter what. It is a nightmare that no parent should have to face. No matter what, you are the best mom, everything you do is out of the most pure and deepest love, and you are stronger than you can ever imagine. My heart is with you always and whatever you need, just say it

  6. josina

    pomegranate / 3973 posts

    I am soo sooo sorry you are going through this!!

  7. Mrs. High Heels

    blogger / eggplant / 11551 posts

    I am so sorry you're going through this.

  8. MrsScallop

    persimmon / 1328 posts

    I have been thinking of you since your first test result and I am just devastated for you! I know how much you have gone through and how much your little boy is wanted. You will make the best decision you can for him and your family. You know our story and continuing struggles, so if you ever want to talk about life with a complex special needs baby, I am here. So much love to you and your family! ❤❤❤

  9. Alba4

    nectarine / 2951 posts

    My heart goes out to you as I'm sure this is the hardest decision of you life. Just know you have support here no matter which path you choose. ❤

  10. MamaCate

    pomegranate / 3595 posts

    I am so sorry you are dealing with this. I will be praying for you and your family.

  11. faithlove224

    coffee bean / 38 posts

    This is so heartbreaking, Im very sorry

  12. Mama Bird

    pomegranate / 3127 posts

    I'm so very sorry. Praying that you get some clarity soon. What an awful, unfair situation... whatever you decide, no judgement at all, just wishes for strength and healing.

  13. BSB

    hostess / wonderful apple seed / 16729 posts

    Hugs!! I'm thinking of you and the decisions you have to make. I'll be there for you in whatever decisions you make.

  14. MrsLonghorn

    clementine / 806 posts

    I'm crying at my desk reading this. I am so heartbroken for you. I wish you strength and peace as you find the decision that is best for your family.

  15. 2PeasinaPod

    pomelo / 5524 posts

    Oh no...I am so sorry. I've been silently following your story and was praying for you all along. You have an incredibly difficult and heartbreaking decision to make, and I wish you all of the love and peace possible while making that decision. There are no words that can help, but if there's anything I can do, please let me know. Praying for you and your sweet boy.

  16. Crisark

    pomegranate / 3398 posts

    I am so sorry.

  17. BananaPancakes

    grapefruit / 4817 posts

    I've been thinking about you guys all morning. This sucks and I'm so angry for you. I'm so terribly sorry.

  18. GreenThumb

    pear / 1986 posts

    I am so sorry to hear this heartbreaking news and wish nothing but love, support, and peace for you and your family as you work through this time.

  19. mrs.shinerbock

    pomegranate / 3779 posts

    I am so sorry.

  20. Mrs Green Grass

    pomelo / 5628 posts

    This is truly heartbreaking to hear and I am so sad that you have to be here. You have my support in every way and I wish there was something I could actually do to ease your pain. I am so very sorry and wish you and your family peace. I know there have been a variety of bees in sifferent similar situations that you can reach out to, but please know you can contact me anytime!!

  21. Astro Bee

    pear / 1503 posts

    My heart is breaking reading this!!! I can only imagine the level of pain and distress this brings to your family, especially given your previous struggles. You have the support of all of us, as you and your family figure out how to handle this. I hope you find answers soon. No matter your decision you will always find acceptance here!

    A boy in my class growing up had SB. He was a pretty happy little boy, but was confined to a motorized wheelchair, and had learning disabilities, so he was eventually held ball in school, but did graduate high school. He was never able to support himself as an adult and died in his late 20s. Despite all that, he had a lot of friends and support in the community, and our town renamed playground after him when he passed. He had a much older sister, but I'm not exactly sure what effect his disability had on the family, his mother never worked so she could stay home and support him, and the family struggled financially.

  22. Ms.Badger

    clementine / 918 posts

    I just want to say that I'm here for you, Mama. You and your family are in a tough spot having to make decisions for someone who you love with your whole heart. I hope you take your time, make the best decision for your LO and your family, and feel right with the decision. If you need someone to talk to who has been through some tough stuff, I'm here for you. HUGS

  23. GoGoSnoGirl

    pear / 1558 posts

    I'm so very sorry to hear your news. This is just gut wrenching. Love & peace to you & your family that you can get all the information you need to decide how to proceed.

  24. Ree723

    grapefruit / 4819 posts

    I haven't been able to stop thinking of you and your sweet baby boy since you first posted. I am so, so sorry. You'll continue to be in my thoughts as you make decisions no parent should ever have to make. All the love in the world to you.

  25. Freckles

    honeydew / 7444 posts

    I am so sorry. I am truly heartbroken for you and your family.

  26. Jess1483

    nectarine / 2641 posts

    I'm so sorry. I wish I had better words. What a tough decision.

  27. sapphire

    nectarine / 2173 posts

    I'm so sorry. Thinking of you.

  28. MoonMoon

    pomegranate / 3393 posts

    I'm so so sorry to hear your devastating news.

  29. wrkbrk

    pomelo / 5084 posts

    @winniebee: Sending love, bee.

  30. MK0180

    kiwi / 545 posts

    I am truly sorry to read your news - sending you and your family much love and support

  31. QueensBee

    pear / 1718 posts

    Sending love, prayers, and support for your family. I'm so sorry you are faced with this heartbreaking decision.

  32. sunnyday

    kiwi / 573 posts

    So sorry

  33. MrsKoala

    cantaloupe / 6869 posts

    This is just so completely heartbreaking. I hope that all of the support that has been posted here will help in some way but I know that in times like these words are not enough. We will all be thinking of you and your family.

  34. Baby Boy Mom

    pomegranate / 3983 posts

    I'm so sorry you're going through this. Will be thinking of you and sending strength and peace.

  35. travelgirl1

    cantaloupe / 6630 posts

    I think all of our hearts are breaking for you and your family today. I'm so very sorry. Lots of love and support to you, whatever you decide. You will never get judged by us.

  36. pregnantbee

    grapefruit / 4717 posts

    I just don't even have the words to express how sorry I am that this is happening. For what it's worth, one of my relatives has spina bifida and is now about 36 years old. I don't know how severe, but I'm happy to connect you to his dad if you'd like some guidance as to what it is like raising a child who has this. xo

  37. sotofamilia

    kiwi / 612 posts

    I am so sorry, what devastating news. Much love and support from me as you navigate the next steps.

  38. Umbreon

    clementine / 854 posts

    I am so so sorry.

  39. Mrs. Smoothie

    blogger / cherry / 174 posts

    I'm so sorry to hear this news for you and your family. I hate to hear of another family facing a terrible diagnosis. Do whatever is best for you and your family. Sending you thoughts of strength right now.

  40. Hoots

    kiwi / 673 posts

    I am so very sorry.

    I'm sure you've already asked or have thought of this, but could your OB call the MFM and get an appointment for you today? When my OB was concerned about something time sensitive she made the call herself and they squeezed me in a few hours later.

Reply »

You must login / Register to post

© copyright 2011-2014 Hellobee