Hellobee Boards

@Danizaur: I'm thinking of you.

@Danizaur: I'm so so sorry you and T are going through this. I hate that he has to feel this way. It isn't fair that little babies should have to feel pain. I'm hoping that they come up with an answer for you very soon and can stop poking and prodding so he can rest comfortably.

I hope they figure out what's wrong very quickly & everyone can get some rest. There's nothing worse than seeing your baby hurting. I know you will get the best possible care.

Ugh. I hope T gets the treatment he needs and feels better soon.

Just the thought of your crying and frightened little one has me worked up. I can't imagine how you feel! Sending thoughts and prayers your way.

Praying for your family.i hope they get answers soon. ((Hugs))

Praying for your sweet boy.

@Danizaur: I'm so, so sorry you're having such a rough day. I'm hoping and praying for answers soon, so that you can all go home & that sweet boy can get better.

Are you in Lexington? Do you need anything? Hugs and prayers to you all! Hope they give you a definite diagnosis and get T on the mend quickly!

@Danizaur: still thinking of and praying for yall. So many hugs are going out to you & your precious little one

@Danizaur: I understand completely, it took awhile to understand the ways of the hospital, I hope that some of the things I learned can help you. Please, ask anything. You said you were at UK, I'm sure it's very similar to UCLA, being a university. You have my phone number on your wall if you'd like to text

@Danizaur: I hope you get some answers soon. In the meantime, you could maybe see if there's a hospital social worker you could talk with, as well. If they are any good they might be able to help you navigate some of the rights/responsibilities issues that come up. I can imagine it is an extremely challenging time to try to get your bearings and know what to ask for and what to expect. I hope that you find some staff members who can help make the experience less frightening and more comfortable for him. Also, I don't know if this would help or not, but Ellie uses something called a Buzzy when she gets shots (she is scared of needles). I know some hospitals have them on hand now for pediatric and even adult patients for pain management during blood draws, etc. You could maybe ask? You did a great thing recognizing that he needed medical attention.

We went through this about two weeks ago - I'm so sorry it is happening to you too. They can't diagnose bacterial meningitis without a lumbar puncture (your dr wouldn't be sure from just looking at him), so fingers crossed it might not be meningitis at all! In my daughter's case, it was not in the end. Although she was horribly ill for five days, it was "just" a virus. We were terrified for awhile but she bounced back fast - today you'd never know anything happened. She laughed our loud for the first time the day after she was released.

Just wanted you to hear a story like yours with a happy ending. I know What you are going through is scary and awful so just know my family will be thinking of yours this weekend.

eTA: and yes! As mrs. Twine said, give yourself a huge hug for trusting your mama instincts that he needed medical care. Well done!

I'm hoping the rest of your night goes better and that you have some answers soon.

@Danizaur: +1 to @Ms.Badger: it's hard to find your voice, but you will. I remember when DS2 was in the ER the nurse mangled him up looking for an IV site until they finally called the NICU to do it, and I felt like crap since I just sat there and let it happen.

I also remember the back and forth (he has this! No, he doesn't?) To be so so frustrating. I assume you'll have rounds in the morning, make them include you and ask to explain acronyms or other things you don't know. Is it a teaching hospital? Ours was and I felt like rounds were mini tests for the new docs instead of informative for the parents, if you let them.

I hope they figure it out soon and he gets treated so you can go home. I'll be thinking about you and little T.