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  1. sera_87

    pomegranate / 3604 posts

    @T.H.O.U.: it's MRSA & now that 3 babies have it they were all put in the same room away from other patients. (Before we were all in a big open room with a total of 7?ish babies.)

  2. lauren0817

    apricot / 369 posts

    @sera_87: how are things going with you guys? Thinking of you!!

  3. sera_87

    pomegranate / 3604 posts

    @lauren0817: really well! He's finally up to 700 grams (a whole pound and a half!) and he can tolerate a trial of 4 hours off CPAP super well. They keep pushing him to do 6, but after a few days of it (they do trials twice daily) he just ends up getting exhausted so then it's back to 4.

    I cannot believe he's nearly a month old. It just feels completely surreal.

  4. Pumuckl

    pomegranate / 3601 posts

    @sera_87: so glad Theo is doing well. Hope breathing will continue to improve and that he keeps gaining weight. How are you doing and how do your older boys handle the situation?

  5. MrsRcCar

    grapefruit / 4712 posts

    @sera_87: been thinking about you guys! How are they handling his staph infection?

  6. sera_87

    pomegranate / 3604 posts

    @Pumuckl: I'm fine And so far the boys barely know they have a brother. Sometimes we mention to lo1 he has a baby brother but he doesn't seem to really grasp it, and of course lo2 is too young to comprehend even if we did tell him. We haven't brought them to visit and probably won't until he's much bigger.

    @MrsRcCar: they aren't doing anything to treat the colonization except putting him in isolation with the other affected babies and wearing gowns/gloves/purelling the eff out of everything. Except now girl twin has it as well. To be honest the whole situation just makes me want to rip my hair out.
    (there were 2 babies originally affected, one of which was a boy twin, then ours, and now his twin - a girl)

  7. sera_87

    pomegranate / 3604 posts

    Can't believe it's been a month already!

    He really shot up in weight this week - he's gained almost 100grams in 2 days!! He's now 791 grams

  8. T.H.O.U.

    wonderful clementine / 24134 posts

    @sera_87: hi cute fellow!!

  9. Pancakes

    nectarine / 2180 posts

    @sera_87: Hi Theo! You are adorable! Good work growing!

  10. MrsRcCar

    grapefruit / 4712 posts

    @sera_87: he looks wonderful momma!!

  11. 2littlepumpkins

    grapefruit / 4455 posts

    @sera_87: Amazing! What a beautiful little boy. Hope he continues to grow and gain!

  12. Crisark

    pomegranate / 3398 posts

    Amazing and perfect!

  13. MrsF

    honeydew / 7283 posts

    @sera_87: He's so handsome! Congratulations to you both

  14. avivoca

    watermelon / 14467 posts

    @sera_87: Hi Theo! Look at how big you are getting! Keep growing little boy!

  15. cheesetomywhine

    pear / 1586 posts

    @sera_87: yay! Such a strong handsome boy!

  16. Nutella

    persimmon / 1045 posts

    @sera_87: he is gorgeous!!

  17. Cherrybee

    papaya / 10570 posts

    Oh, he is just perfect! Good work, keep growing gorgeous boy!

  18. travelgirl1

    cantaloupe / 6630 posts

    Oh he is lovely! Happy one month, Theo!

  19. travellingbee

    hostess / papaya / 10219 posts

    Aw what a little miracle! He's so sweet!

  20. SweetiePie

    honeydew / 7463 posts

    Happy one month! Keep growing, little man!

  21. Mama Bird

    pomegranate / 3127 posts

    What a cutie! Keep growing, Theo!

  22. .twist.

    pineapple / 12802 posts

    @sera_87: He is looking so great! Adorable!

  23. sorrycharlie

    hostess / watermelon / 14932 posts

    oh he's so stinkin' sweet.

  24. Happygal

    pomelo / 5000 posts

  25. MK0180

    kiwi / 545 posts

    Thank you for sharing your journey and keeping us updated! What a handsome boy ! He's growing so fast!!

  26. MrsRcCar

    grapefruit / 4712 posts

    @sera_87: wishing your family a Happy Holidays. I hope the holiday is not stressful and you get to enjoy time with your family.

  27. QBbride

    pomegranate / 3192 posts

    @sera_87: oh my gosh! He is so damn cute!

  28. simplyfelicity

    cantaloupe / 6634 posts

    @sera_87: Thinking of you guys...how is sweet Theo doing?

  29. sera_87

    pomegranate / 3604 posts

    @simplyfelicity: Theo is actually doing pretty well. He has some on-going issues. He WAS off cpap completely for a week and then his stats started dropping so as of right now he's back on it full time. He currently weighs around 4.2 lbs.

    They're going to transfer him to the Children's Hospital probably by this weekend, for more specialized care and also because he's over the 44-week "limit" that our current NICU deals with.
    He has a club foot that will probably require PT and/or a cast. Obviously it's still early to assess the severity, but hopefully we can avoid surgery.
    He has (thankfully mild) hypospadias, which will require surgery.
    His trunk is very small, his lungs are smaller than average and his heart is slightly large, which is why he's having so much trouble with his breathing. It is most likely that he will come home on portable oxygen and it's going to be a pretty long process from what I understand.
    He was also scanned for primordial dwarfism, except they couldn't get a good enough picture so that's still inconclusive. They're going to rescan at a later date. I'm really trying not to fall down that rabbit hole just yet.
    He has a sluggish liver, and some leeching of calcium from his bones; I'm not sure what that means long term but I do know he gets a few extra vitamins for the calcium and Ursodial for the liver.

    I still have absolutely no idea when he's going to be coming home. One day at a time though, right?.

  30. Raindrop

    grapefruit / 4731 posts

    @sera_87: What a fighter!! He's so cute. I hope he gets better and better and you can take him home.

  31. HLK208

    pineapple / 12234 posts

    @sera_87: man. Just hugs, positive thoughts and prayers.

  32. agold

    grapefruit / 4033 posts

    @sera_87: Sending you lots and prayers and thoughts. Keep strong. And oh my gosh, Theo's little face is just about as beautiful as a baby boy can be.

  33. Synchronicity

    grapefruit / 4089 posts

    What a handsome little dude! And such a fighter. Thinking good thoughts for your family!

  34. travelgirl1

    cantaloupe / 6630 posts

    Oh, he is a sweetheart! What a gorgeous boy. I hope his transfer goes smoothly and the coming weeks and months go well.

  35. Mrs.Someone

    pomelo / 5228 posts

    What a sweet boy! Glad he's doing well.

  36. simplyfelicity

    cantaloupe / 6634 posts

    @sera_87: He's absolutely precious! And, yes, one day and one step at a time. So glad to hear he is making progress and getting stronger.

  37. artsyfartsy

    cantaloupe / 6692 posts

    Sweet baby

    Lots of love and support for you both!

  38. MrsRcCar

    grapefruit / 4712 posts

    @sera_87: been thinking about you guys.

  39. MrsF

    honeydew / 7283 posts

    @sera_87: Such a tough little guy! Thanks for the update

  40. jhd

    coconut / 8078 posts

    Such a beautiful boy! Glad to hear he's making progress.

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