honeydew / 7295 posts
Colossal hugs to you momma! You are right that ASD is not a big deal because the spectrum is so broad but As the parent of a high functioning borderline kid (diagnosis is still provisional) who is now thriving do suggest you do something that I wish I had done sooner: join an ASD support group for your area. Even if you child is borderline or it's just a speech delay or ADHD (all which are still possible for my son) you will learn so much and love the support. There is nothing in this world like it. Take it from me. It's life changing and really wonderful. Good luck. I belong to a private group on Facebook and it's amazing. The women really lift each other up and their kids.
grapefruit / 4712 posts
@MrsMccarthy: I have been actively involved in a special needs/ speech delay group on Facebook. Plus I just linked up with the special needs group where I am living. I haven't been able to connect with anyone yet.
@MrsRcCar: that's excellent! I hope you find a lot of support there. I know I have.
pomelo / 5617 posts
Big hugs, you are going through so much. That is so awesome that your husband has treated you to some relaxation. I hope you enjoy it!
@ALV91711: thanks! I really did have a great time!
It was great to get sometime away with my SIL. Plus I found out that my SIL is expecting their second!! I am so pumped for her! This trip and relaxation really recharged my batteries. It was great to talk it all out in person with a different sounding board then DH. (Not that he isn't great, but sometimes I just need my friends to run things by) . Plus it was just great to watch N and E playing with their cousin and other kids.
The only bummer is I am pretty sure N broke his nose. He went head (nose) first into the coffee table and now it's swollen and he has double black eyes. The doctor said unless we were concerned about his breathing we could wait to be seen tomorrow. We are keeping him comfortable with Motrin at the moment and he seems ok as long as no one gets near his nose.
Well, looks like Nolan did break his nose but there is nothing to do but manage his pain and let it heal.
We did get to sit down with a dietician today about N's gut. She agrees that he needs to see GI. The only thing she suggested was limiting his sugars, because it sounded like perhaps his body was not absorbing sugar properly. She also suggested upping his fats.
We have EI paperwork tomorrow for both boys, then feeding follow up for E.
GOLD / papaya / 10166 posts
@MrsRcCar: I'm so sorry! That's all you need is one more thing to deal with . W busted her nose this weekend, too. Good luck with everything tomorrow
@BabyBoecksMom: I hope W's nose feels better quickly! Toddlers are so busy and clumsy.
My friend messaged me last night regarding our dinner plans and cancelled. I completely understand where she is coming from (they will be getting in later then they thought and likely way past bed time), I am just bummed.
N qualified for speech therapy through EI. It wasn't a shocker for us. The coordinator did stress that he will only have services with them until October when he turns three. We have speech tomorrow with private therapy. N sees GI on Thursday for his first appointment.
E will be receiving OT services through early intervention. E also had his feeding follow up today. He will be doing feeding therapy once a week. We are also going to be moving forward with a swallow study. The feeding therapist seemed to think his issue was rooted in reflux issues. So they recommend he sees GI for his reflux and they will work on his feeding aversion.
Today I am feeling like I have lost my much-ness as it were. Over the weekend my parents came to visit (which overall was fun) but all I heard from both my parents was "well you have made real progress on the boxes ::eye roll:: "
Also I forgot to pay bills like electric and cable because I have been so caught up with the boys medical stuff. DH was sweet about it but who forgets to pay the electric bill?!?
Fast forward to today, N was being just terrible in the stroller at the hospital just yelling and screaming that he wanted salad that I was trying to pay for and he nearly dumped on the floor. I yelled at him in front of all these strangers. All I wanted to do after that was cry and hug him. I understand that this has been hard for him and everyone involved. I felt like the worst mom for yelling at him.
Plus I just want to throw away all the dirty laundry and buy new clothes because I just don't want to deal with laundry right now but it really needs done.
pomelo / 5628 posts
Aw sweetie, you just need some help! I can barely get my house in order (it's not) and I'm not dealing with anything special. Just pick one small thing to get done (that's easy) and call it a day.
@Mrs Green Grass: I think I might tackle laundry when the boys got to bed. Not before. I tackled feeding therapy and dishes today.
grapefruit / 4731 posts
@MrsRcCar: *big hugs* Sounds like you are having a rough day. Good plan, do something small after the boys get down.
I really hate comments from the peanut gallery! Hey I moved into our place 5 years ago and still have a dozen or so boxes I haven't touched yet. Someday I'll get to them... someday... I swear!
honeydew / 7232 posts
@MrsRcCar: ditto to what @Mrs Green Grass: said. Do one small thing (even though you've done a ton already) and call it a day. If you're into it - after the boys are asleep treat yourself to a beer/wine/cookie/ice cream -- whatever floats your boat ;).
@MrsRcCar: that is something for today! Don't put too much pressure on yourself with the little things. The big ones: feeding, therapy are what counts right now.
@Raindrop: @hellobeeboston: @Mrs Green Grass: Thanks ladies. I thought I really had it together until N started the melt down at the hospital. We are at the hospital again tomorrow for E's GI appointment. We will be at the hospital Wednesday too for E in the morning and then speech therapy way up town for N in the afternoon.
That's a lot of appointment time and waiting...
@Mrs Green Grass: we pretty much live at the hospital right now. We are there 3 or 4 times a week right now. I will be happy for it to stop soon. Hard to make real life mommy friends when I am busy rushing off to appointments.
@MrsRcCar: get storybots on your phone if you don't have it. It's a lifesaver for us!
@Mrs Green Grass: I will have to look into Storybots! My boys love the PBS kids app.
Hugs mama, what a day. I'd say put the laundry in the wash and then put your feet up. You need a rest and time to re charge too.
We've lived in our place 1.5 years and still have boxes packed. Just a couple months ago we hung pictures. You are way to busy to worry about unpacking.
I'm hoping for no more big tantrums this week while you are at all your appointments.
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