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I am so sorry. I had .23 mom with my first (first percentile). One idiot doctor told me to maybe consider an abortion despite not knowing anything about it. I switched to a high risk group that assured me everything was going to be fine. They research low pappa and things aren't nearly as bad as some of what you read on the Internet. Everything did turn out fine. My son was born spontaneously at 37 weeks. I think he was slightly growth restricted bc he came out at 6 lbs (9th percentile) and quickly jumped up to the 60th percentile after birth. Hugs. Please wall me if you have any questions.

I had very low PAPP-A levels (can't remember the exact number, sorry), which contributed to a positive screen for trisomy 21. Harmony test ultimately showed no T21 and I had a huge (9lb!) baby boy at 40 weeks. My placenta was huge too lol. Besides the Harmony test, I didn't have any additional testing or monitoring. I was super stressed about it as well, and Google is scary, but my midwife assured me that the numbers don't always mean trouble. Try not to worry too much. I know it's tough!

@ms.line: I rarely post here, but had to pop in to share my experience. My Dr. strongly recommended against googling when I tested low for PAPP-A and I surprised myself by listening! I was still really worried at first, but two different nurses at my practice said in all their years, they had never seen a patient with low levels actually have major issues. My son was born two weeks early and fairly small (under 6 lbs) but totally healthy, no issues. Like @Raintreebee, I had extra growth scans and tons of NSTs, but results were good every time. And I'm pregnant again with normal PAPP-A levels, so it's not something that will necessarily pop up during subsequent pregnancies.

My PAPPA was .12 MoM and I'm almost 35 weeks along. I had one extra scan at 30 weeks and started NST at 32 weeks. Everything seems normal so far and none of the doctors I've seen at my group OB practice are overly concerned about it. They told me that the extra scans are just to be extra careful and that they haven't seen negative outcomes with low PAPPA. I have been super worried about this since finding out (it's so hard not to!) but have tried to enjoy the pregnancy and stay positive. I also googled a lot at first but have since stopped because it just drives you crazy! Fingers crossed for us both!

My levels were .16 MoM. I was just given a IUGR label at 29 weeks today (down to the 10th percentile). Blech. Still not the end of the world -- just lots of scans and I will probably be induced early (I just really, really hope to avoid the NICU).

Don't worry, though. Low PAPP-A levels are correlated with some issues, but you are far more likely to avoid them.

@ms.line: Hi. I just saw your post on the due date boards (I am due in January and also stalk the February boards). I think it is a little odd that your midwife wouldn't recommend additional monitoring. Even though the outcomes are generally fine for low papp-a, it is standard to do additional monitoring for under the 5th percentile. I interviewed about 6 OBs when we were going through this, and all of them had the same plan--growth scans every 4 weeks and NSTs if the growth scans weren't favorable. Anyway, I don't mean to worry you. Just wanted to share what I discovered was routine practice for low papp-a.

@ms.line: I think it was 24 weeks because they measured the growth at the early anatomy scan at 16 weeks and the regular anatomy scan at 20 weeks. I think one of the doctors recommended starting them at 28 weeks. The evidence on the significance of low papp-a is mixed, but why not be safe instead of sorry since it's just a few extra ultrasounds. Keep us updated.

I just found this thread and feel comforted by those of you with perfectly normal experiences. My PAPP-A levels came back as .18 during my first trimester screening, which triggered an increased possibility of Down's. A Harmony test put us back at low risk for Down's, But now my AFP test results came up high, with an in increased risk of CP. I'm feeling pretty defeated by blood tests at this point.
So far I've kept myself from Goigling low PAPP-A, so I don't really know others experiences. The genetic councilor was very reassuring though, and this was a comfort.
My anatomy scan is s little over two weeks away and I'm getting more and more anxious to know that baby is growing well, but also more and more nervous that we will get more bad news.
How were everyone's anatomy scans? Did anyone have a baby in the lower growth percentile?

@ms.line: That's good to know. It's great that you were measuring ahead, and that everything's been fine up to this point. Baby was measuring a week behind during my NT scan, and I am so afraid he or she will measure behind again. I already am dealing with pregnancy after MC/ over a year of TTC anxiety, and now I'm dealing with all the bad test results. I will be so relieved to have a healthy baby in my hands!

Delurking to share my experience...I had low Papp-a. My doctor recommended a high protein diet from the time we found out (approx week 14) and "prescribed" wild caught salmon once a week for the omega 3s and a baby aspirin daily. This was all for the health of the placenta. I had monthly ultrasounds until 32 weeks, then weekly until week 38. I was induced at 39 weeks as a precaution. My baby was born absolutely healthy at 6 lbs 4 oz. She typically measured in the 15-20th percentile via u/s when I was pregnant, however through infancy she has consistently been in the 3-10th percentile. She is small but healthy and happy!